It all started 5 weeks early on Sunday morning. An eternity later he arrived. One week in the nicu and I noticed little things that the nurses and doctors pushed off as normal. Over worried mom. Little did we know and home we went.
Everything seemed to be a smooth transition for our family of 6. Eat. Sleep. And repeat.
11 months he cruzed. 12 month to 18 months and 20 days he still was holding on to things and walking w assistance. He never crawled He scooted. His head was a little floppy. 6 months pt 3 times a week to get his core body and neck stronger. 18 months, starting throwing up more consistently. Dr bot really concerned abour it. Said he would out grow it. Wasnt pushed to seek a specialist. 12 months went to see a peds nuero surgeon for not walking. Testing? Knock him out to do a brain scan. We waited. Progressing at a better clip. Cha
Speed ahead 3 months. He rolled. 6 months he sat. Started projectile vomiting. Happened some times. Had to be feed with a slow release nipple, like you give a newborne. Good thing we stashed some from the hospital before we left!
18 months switched to early intervention 1 time a week at home or daycare.
2 year check up. Was told our son had hypotnia. Congenital hypotonia. Weak muscles, floppy baby syndrome. It made sense. At 36 months went to get tested for outside services for pt, possible ot and speech.. DENIED. WHAT? ARE YOU KIDDING ME?
And that is when it hit. Something. Was.Missing.
Off to the children’s hospital and got referals. Saw pedicteic neuro at the new hospital and group. World class hospital. Ordered an Mri of his brain.
He was almost 4 at this point.
Living with love and MD 